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Useful National Organisations
Useful National Organisations
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National Organisations for Information and Advice
This is a list of some of the organisations in the UK that you may find useful, but obviously there are many others. If you know of any that are not covered here, or of any that need updating, please let us know by contacting Katharine Thorn at katharine.thorn@rbk.kingston.gov.uk
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Action for Sick Children
Offers support for children in hospital and in their home and helps to prepare children for hospital admission, raising awareness of the needs of sick children and their families in hospital and in the community. They will be able to give you a local contact.
Address:
Action for Sick Children
32b Buxton Road
High Lane
Stockport
SK6 8BH
Telephone: 01663 763 004
Helpline: 0800 0744 519
Website:www.actionforsickchildren.org
ACE (The Advisory Centre for Education)
Provides information and advice on all aspects of state education. Handbook 'The Ace Special Education Handbook' deals in detail with the Statementing procedure.
Address:
1c Aberdeen Studios
22 Highbury Grove
London
N5 2DQ
Telephone: 0808 800 5793 (General advice)
Telephone: 0808 800 0327 (Exclusion Advice)
Telephone: 020 7704 9822 (Exclusion information)
Website: www.ace-ed.org.uk
AFASIC For all Speech Impaired Children
Afasic is the UK charity representing children and young adults with communication impairments, working for their inclusion in society and supporting parents and carers.
Address:
20 Bowling Green Lane
London
EC1R 0BD
Telephone: 0207 490 9410
Telephone: 0845 355 55 77 (lo-call)
Fax: 020 7251 2834
Email: info@afasic.org.uk
Website:www.afasic.org.uk
ALLFIE (Alliance for Inclusive Education)
Address:
336 Brixton Road
London
SW9 7AA
Telephone: 020 7737 6030
Email: info@allfie@org
Website:www.allfie.org.uk
ASBAH (Association for Spina Bifida and Hydrocephalus)
Address:
42 Park Road
Peterborough
PE1 2UQ
Telephone: 01733 555988
Fax: 01733 555985
Email: helpline@asbah.org
Website: www.asbah.org
British Dyslexia Association
Address:
Unit 8 Bracknell Beeches
Old Bracknell Lane
Bracknell
RG12 7BW
Telephone: 0845 251 9002
Fax: 0118 935 1927
Email: admin@bda-dyslexia.demon.co.uk
Website: http://www.bdadyslexia.org.uk
Disability Sports England
Address:
Unit 4G
N17 Studios
784-788 High Road
Tottenham
N17 ODA
Telephone: 020 8801 4466
Fax: 020 8801 6644
Email: info@dse.org.uk
Website: http://www.disabilitysport.org.uk
The Brittle Bone Society
Address:
30 Guthrie Street
Dundee
DD1 5BS
Telephone: 01382 204 446
Telephone: 08000 282459 Helpline
Fax: 01382 206 771
Email: contact@brittlebone.org
Website: www.brittlebone.org
Carers National Association
Provides information and campaigns for all carers.
Address:
20/25 Glasshouse Yard
London
EC1A 4JS
Telephone: 020 7490 8818
Telephone: 0808 808 7777 Adviceline (Freefone) (Mon-Fri 10 - 12/ 2 - 4pm)
Email: internet@ukcarers.org
CSIE (Centre for Studies on Inclusive Education)
CSIE is an independent organisation promoting inclusive education as a basic human right of every child.
Address:
New Redland Building
Coldharbour Lane
Bristol
BS16 1QU
Telephone: 0117 344 4007
Fax 0117 328 4005
Email: admin@csie.org.uk
Contact a Family
Parent Helpline on all aspects of special needs - in particular putting parents in touch with national networks of specific conditions or with local groups. Also a Directory of Specific Conditions and Rare Syndromes with Family Support Networks and a Parents' Group Action Pack.
Address:
209-211 City Road
London
EC1V 1JN
Telephone: 0808 803 3555 (Freefone)
Textphone: 0808 808 3556
Email: info@cafamily.org.uk
Website: www.cafamily.org.uk
CDC (Council for Disabled Children)
CDC works to influence national policy that impacts upon disabled children and children with special educational needs and their families.
Address:
National Children's Bureau,
8 Wakely Street
London
EC1V 7QE
Telephone: 020 7843 1900
Fax: 020 7843 6313
Email: cdc@ncb.org.uk
Website:www.ncb.org.uk/cdc/
Cystic Fibrosis Trust
Address:
11 London Road
Bromley
Kent
BR1 1BY
Telephone: 020 8464 7211
Helpline: 0300 373 1000 (Support)
Helpline: 0300 373 1010 (Benefits)
Helpline: 0300 373 1020 (Wlefare)
Fax: 020 8313 0472
Email: lyull@cftrust.org.uk
Website: www.cftrust.org.uk
D-F
Department for Education (DfE) Publications
For general enquiries, or enquiries relating to specific DfE policies and initiatives, please contact the DfE Public Enquiry Unit:
Email: info@education.gsi.gov.uk
Telephone: 0870 000 2288
Fax:01928 794 248
Website: http://publications.education.gov.uk
Diabetes UK
Address:
Macleod House
10 Parkway
London
NW1 7AA
Telephone: 020 7424 1000
Fax: 020 7424 1001
Email: info@diabetes.org.uk
Website: www.diabetes.org.uk
Dial UK
Disability information and advice service.
Address:
St Catherines
Tickhill Road
Doncaster
DN4 8QN
Telephone: 01302 310 123
Fax: 01302 310 404
Textphone: 01302 310 123
Email: informationenquiries@dialuk.org.uk
Website: http://www.dialuk.info
Disability Alliance
This group publishes the Disability Rights handbook.
Address:
Universal House
88-94 Wentworth Street
London
E1 7SA
Telephone: 020 7247 8776
Fax: 020 7247 8765
Telephone: 0845 130 9177 (Helpline)
Website: www.disabilityalliance.org
Disability Law Service
Address:
39-45 Cavell Street
London
E1 2BP
Telephone: 020 7791 9800
Minicom: 020 7791 9801
Fax: 020 7791 9802
Email: advice@dls.org.uk
Website: www.dls.org.uk
Disabled Living Foundation
DLF is a national charity that provides impartial advice, information and training on daily living aids.
Address:
380-384 Harrow Road
London
W9 2HU
Telephone: 020 7289 6111
Telephone: 0845 130 9177
Email: info@dlf.org.uk
Website: www.dlf.org.uk
Down's Syndrome Association
The national charity for those affected by Down's Syndrome and their families.
Address:
Down's Syndrome Association
Langdon Down Centre
2a Langdon Park
Teddington
TW11 9PS
Telephone: 0845 230 0372
Fax: 0845 230 0373
Email: info@downs-syndrome.org.uk
Website: www.downs-syndrome.org.uk
Epilepsy Action
Address:
Anstey House
Gate Way Drive
Yeadon
Leeds
LS19 7SX
Telephone: 0808 800 5050
Telephone: 01132 108 850
Text Message: 07797 805 390
Fax: 01904 652 625
Email: helpline@epilepsy.org.uk
Website: www.epilepsy.org.uk
The Family Fund
The Familiy Fund is the largest independent grant-giving organisation helping low-income families caring for a severely disabled child.
Address:
PO Box 50
York
YO1 9ZX
Telephone: 01904 621 115
Telephone: 0845 130 4542
Textphone: 01904 658 085
Email: info@familyfund.org.uk
Website:www.familyfund.org.uk
Fragile X Society
Fragile X Society provide leaflets and booklets giving basic to more detailed information about fragile X Syndrome
Address:
Rood End House
6 Stortford Road
Great Dunmow
Essex
CM6 1DA
Telephone: 01371 875 100
Fax: 01371 859 915
Email: info@fragilex.org.uk
Website: www.fragilex.org.uk
G-I
Headway (National Head Injuries Campaign Association)
Headway is a charity set up to give help and support to people affected by brain injury.
Address:
Bradbury House
190 Bagnall Road
Old Basford
Nottingham
Nottinghamshire
NG6 8SF
Telephone: 0808 800 2244
Telephone: 01159 240 800
Fax: 01159 584 446
Email: enquiries@headway.org.uk
Website: www.headway.org.uk
IPSEA (The Independent Panel for Special Educational Advice)
IPSEA provides independent advice and expert second opinion during the statementing process.
Address:
Hunters Court
Debden Court
Saffron Walden
CB11 4AA
Telephone: 0800 018 4016
Telephone: 01799 582 030
Website: www.ipsea.org.uk
J-L
Kids
KIDS is a charity which has pioneered a number of approaches and programmes for disabled children and young people.
Address:
49 Mecklenburgh Square
London
WC1N 2NY
Telephone: 020 7520 0405
Website: www.kids.org.uk
M-O
MENCAP
MENCAP works with people with a learning disability to change laws and services, challenge prejudice and directly support thousands of people to live their lives as they choose.
Address:
123 Golden Lane
London
EC1Y 0RT
Telephone: 020 7454 0454
Telephone: 0300 333 1111
Telephone: 0808 808 1111 (Helpline)
Fax: 020 7608 3254
Email: information@mencap.org.uk
Website: www.mencap.org.uk
The Migrane Trust
The Migraine Trust is the health and medical research charity for migraine in the United Kingdom.
Address:
55-56 Russell Square
London
WC1B 4HP
Telephone: 020 7462 6601
Fax: 020 7436 2880
Email: info@migrainetrust.org
Website: www.migrainetrust.org
NAS (The National Autistic Society)
NAS is the leading UK charity for people with autism (including Asperger syndrome) and their families.
Address:
393 City Road
London
EC1V 1NG
Telephone: 020 7833 2299
Fax: 020 7833 9666
Telephone: 0845 070 4004 (Helpline)
Email: info@nas.org.uk
Website: www.nas.org.uk
NASEN (National Association of Special Education Needs)
Address:
Nasen House
4/5 Amber Business Village
Amber Close
Amington
Tamworth
B77 4RP
Telephone: 01827 311 500
Fax: 01827 313 005
Email: welcome@nasen.org.uk
Website: www.nasen.org.uk
National Asthma Campaign
Asthma UK is the charity dedicated to improving the health and well-being of the 5.4 million people in the UK whose lives are affected by asthma.
Address:
Summit House
70 Wilson Street
London
EC2A 2DB
Telephone: 0800 121 62 44
Telephone: 020 7786 4900
Fax: 020 7256 6075
Email: info@asthma.org.uk
Website:www.asthma.org.uk
The National Deaf Children's Society
The NDCS is committed to providing clear and balanced information about all aspects of deafness.
Address:
15 Dufferin Street
London
EC1Y 8UR
Telephone: 020 7490 8656 (voice and text)
Fax: -020 7251 5020
Telephone: 0800 252380 Freefone (2.00- 5.00pm Parents only)
Email: ndcs@ndcs.org.uk
Website: www.ncds.org.uk
Network 81
Network 81 is a national network of parents working towards properly resourced inclusive education for children with special educational needs.
Address:
1-7 Woodfield Terrace
Chapel Hill
Stanstead
Essex
CM24 8AJ
Telephone: 0845 077 4055 (Helpline)
Telephone: 0845 077 4056
Fax: 0845 077 4057
Email: info@network81.org
Website: www.network81.org
P-R
PI (Parents For Inclusion)
Support for parents who are concerned about special educational needs.
Address:
336 Brixton Road
London
SW9 7AA
Telephone: 0800 652 3145
Email: info@parentsforinclusion.org
Website: www.parentsforinclusion.org
The Psoriasis Association
The Psoriasis Association is the leading national membership organisation for people affected by psoriasis - patients, families, carers and health professionals.
Address:
Dick Coles House
2 Queensbridge
Northampton
NN4 7BF
Telephone: 01604 251 620
Telephone: 08456 760 076
Fax: 01604 251 621
Email: mail@psoriasis-association.org.uk
Website: www.psoriasis-association.org.uk
RADAR (Royal Association for Disability and Rehabilitation)
RADAR is the UK's largest disability campaigning organisation, with a membership of over 900 disability organisations and individual campaigners.
Address:
Unit 12, City Forum
250 City Road
London
EC1V 8AF
Telephone: 020 7250 3222
Fax: 020 7250 0212
Minicom: 020 7250 4119
Email: radar@radar.org.uk
Website: www.radar.org.uk
Rathbone Special Education Advice
Rathbone is a UK-wide voluntary youth sector organisation providing opportunities for young people to transform their life-circumstances by re-engaging with learning, discovering their ability to succeed and achieving progression to further education, training and employment.
Address:
Churchgate House
56 Oxford Street
Manchester
M1 6EU
Telephone: 0800 731 5321 (Freefone)
Telephone: 0161 236 5358
Fax: 0161 238 6356
Out of Hours: 07879 248 722
Website: www.rathbonetraining.co.uk
S-U
SCOPE
Scope wants to create a world where disabled people have the same opportunities to fulfill their life ambitions as everyone else. To achieve this we work with disabled people to improve policy, legislation, services and attitudes that have an impact on disabled people’s lives.
Address:
6 Market Road
London
N7 9PW
Telephone: 020 7619 7100
Telephone: 0808 800 3333 Helpline (Freefone)
Email: response@scope.org.uk
Website: www.scope.org.uk
SENSE
Sense is the leading national charity that supports and campaigns for children and adults who are deafblind
Telephone: 0845 127 0060
Textphone: 0845 127 0062
Fax: 0845 127 0061
Email: info@sense.org.uk
Website: www.sense.org.uk
SKILL (National Bureau for Students with Disabilities)
Promoting equality in education, training and employment for disabled people
Address:
Unit 3, Floor 3
Radisson Court
219 Long Lane
London
SE1 4PR
Telephone: 020 7450 0620
Fax: 020 7450 0650
Textphone: 18001 0800 328 5050
Text Service: 07786 208 028
Email: info@skill.org.uk
Website: www.skill.org.uk
TIN (Transition Information Network)
The Transitional Information Network, (TIN) provides information for parents, carers and people who work with and for disabled young people in transition to adulthood.
Address:
8 Wakley Street
London
EC1V 7QE
Telephone: 020 7843 6006
Fax: 020 7843 6313
Email: tin@ncb.org.uk
Website: www.transitioninfonetwork.org.uk